The Wellcome – HRB Clinical Research Facility and the Trinity Translational Medicine Institute jointly hosted a half day symposium at St. James’s Hospital attended by approximately 50 clinicians and translational scientists.
The Symposium was focused on providing practical advice to investigators on how to involve patients and the public in clinical research studies.
The participants heard from Jenny Preston who described very practical ways that investigators can involve young patients in research. She also highlighted the benefits of PPI in terms of improved research quality and more rapid study start-up and completion.
Julie Power spoke as the founder and chair of Vasculitis Awareness Ireland. She described an EU supported programme (EUPATI) targeted at fostering patient involvement in clinical research studies.
Prof Mary McCarron and Dr. Eílish Burke provided an excellent account of research project that by allowing patients with intellectual disabilities to become part of the research team it allowed them to conduct detailed clinical research of a group of patients who have been hard to research.
Dr. Anne Cody of the HRB described the emerging approach of the HRB to fostering PPI in the research that they fund.
While PPI is not currently formally evaluated, there is an intention to judge the PPI aspect of research proposals in the future. At the end of the presentations, the speakers formed a panel and a Q&A session was moderated by Jeremy Towns of the CRF.
Video link here: https://m.youtube.com/watch?feature=share&v=mFyhXmMcTDo